SHUT OUT: The Experience of People with Disabilities and their Families in Australia 

• Appendix A - Questions from the discussion paper
• Appendix B - List of organisations that provided submissions
• Appendix C - About the consultation process

Appendix A - Questions from the discussion paper

1. What do you think should be included in the National Disability Strategy?
• What are the greatest barriers that people with a disability face to participating fully within the community and what specific local or national actions could be taken to overcome these barriers?
• What areas of research do you think should be a priority to better inform the National Disability Strategy?


2. We are interested to know about your personal experience
• Please tell us in your own words about any time that you, or someone you care for or support, experienced barriers to participating in a community, social or work event.
• What local action has made a positive difference to your life or other people with disability, their families and carers?
• What local action has made a positive difference to the life of someone you care for or support?


3. Do you have any other comments, thoughts or ideas about the National Disability Strategy?

Appendix B - List of organisations that provided submissions

Ability Employment Group Inc.
Ability First Australia Disability Services
Ability Options
Ability Tasmania Group Inc.
Ability Technology
Aboriginal Disability Network NSW
Aboriginal Disability SA (ADNSA) Committee, Department of Families and Communities, SA
Acacia Court Talkback Group
Accepting Engagement Pty Ltd
Access and Inclusion
Access For All Alliance
Access Innovation Media
Accessible Arts
ACE Representing Australia's Disability Employment Network<
Action for Community Living Inc.
Action for More Independence and Dignity in Accommodation Inc.
Action of Disability within Ethnic Communities Inc.
Activ Foundation Inc.
ADDults with ADHD (NSW) Inc
Advocacy for Inclusion
Advocacy Tasmania Inc.
Aged and Community Services Australia
AGOSCI Inc.
Aids and Equipment Action Alliance
Albury and Wagga Wagga Vision Australia
Allergies and Intolerant Reactions Association
Allergy and Environmental Sensitivity Support and Research Association Inc.
Allergy, Sensitivity and Environmental Health Association Qld Inc.
Alzheimer’s Australia
AMPARO Advocacy Inc.
Anglicare Victoria
Arts Access Australia
Arts Disability Leadership Innovation
ASEHA QLD Inc.
Association for Children with a Disability
Association of Independent Schools of South Australia
Attendant Care Industry Association of NSW Inc.
Australasian Faculty of Rehabilitation Medicine
Australian Aphasia Association
Australian Association for Families of Children with a Disability
Australian Association of Social Workers
Australian Communication Exchange Ltd
Australian Confederation of Paediatric and Child Health Nurses – NSW Branch
Australian Council of Social Service
Australian Council of Trade Unions
Australian Deafblind Council
Australian Domestic and Family Violence Clearinghouse
Australian Federation of Deaf Societies
Australian Federation of Disability Organisations
Australian Human Rights Commission
Australian Network for Universal Housing Design
Australian Physiotherapy Association
Australian Psychological Society
Australian Rehabilitation and Assistive Technology Association
Australian Sign Language Interpreters' Association National Inc.
Australian Social Inclusion Board
Autism Aspergers Advocacy Australia

Back to Back Theatre
Barkuma Inc.
Bedford
BEST Community Development
Bethany Community Support
Better Hearing Australia Central Coast Inc.
Beyond Blue: The National Depression Initiative
BHA – Sunshine Coast
Bindi Inc.
Blind Citizens Australia
Bowden Brompton Community Group Inc.
Brain Injury Association of Tasmania
Brain Injury Australia
Brain Injury Network of SA Inc.
Brain Injury Rehabilitation Unit
Brimbank City Council
Brotherhood Community Care – Southern
Bus and Regional Services Branch, Public Transport Division, VIC

Camp Autism
Camperdown Mental Health Service
CAN (Mental Health) Inc.
Care Connect Limited
Carer Support and Respite Centre
Carers Australia
Carers' Link
Carers WA Inc.
CD in Motion
Cerebral Palsy League Queensland
Challenge Disability Services
Chamber of Commerce and Industry
Children and Young People and Child Guardian
Children and Youth Services Therapy Focus Inc.
Christie Centre Inc.
City of Boroondara
City of Darebin
City of Melbourne
City of Port Phillip
City of Salisbury
City of Whittlesea
City of Yarra
Clubs Australia
CNC Disabilities – Royal District Nursing Service of SA
CNM Acquired Brain Injury Rehabilitation Unit
Coffs Harbour and Bellingen Local Disability Advisory Committee
Communication Disability Centre – Postgraduate Coordinator
Community and Allied Health Services
Community Living Association Inc.
Community Options Programme
Computer Club for People with Aphasia
Consumer Advisory Group – Mental Health Inc, NSW
Consumers' Telecommunications Network
Consumers’ Health Forum, ACT
Cosmos Recreation Services
Counsellors and Social Workers Inc.
CRS Australia

Darwin Respite and Brokerage Service Coordinator Anglicare, NT
Deaf Australia Inc.
Deaf Children Australia
Deaf NT
Deafness Forum of Australia
Department for Planning and Infrastructure, WA
Department of Ageing, Disability and Home Care, NSW
Department of Education and Training, NT
Department of Further Education, Employment, Science and Technology, Planning and Evaluation Directorate, SA
Department of Health and Families, NT – Aged and Disability Program
Department of Premier and Cabinet, TAS
Department of Rehabilitation, Disability Action Plan Committee, The Children’s Hospital at Westmead
Dietician’s Association of Australia
Directorate Victoria Legal Aid
Disability Advocacy and Complaints Service of South Australia Inc.
Disability Advocacy Network Australia
Disability Advocacy Service
Disability Council of NSW
Disability Council of Queensland Secretariat
Disability Discrimination Legal Service
Disability Services Commission
Disability Services Queensland
Disability Training Program – Victims of Crime
Disability WORKS Australia Ltd
Disabled Motorists Association
Disabled Surfers Association of Australia Inc.
Diversity Council Australia
Domiciliary Care SA
Down Syndrome Victoria
Down Syndrome WA

Early Childhood Intervention Australia
Early Childhood Intervention Australia (NSW Chapter) Inc.
Early Childhood Services, Learning Links
East Gippsland Shire Council
Eastern Access Community Health
EnableNSW – Health Support Services
Endeavour Foundation
Engineers Australia
Ethnic Child Care Family and Community Services Coop Ltd
Ethnic Disability Advocacy Centre
Evans Community Options

Faculty of Education, Health and Science, Charles Darwin University
Fairholme Disability Support Group Inc. (WA)
Family Advocacy
Family Planning NSW
Farrellys Lawyers
Federation of Ethnic Communities' Councils of Australia
Fragrance and Chemical Sensitivity Support Group
FRANS Inc.
Funktion – Making Life Fit

Gippsland Carers Association Inc. and Victorian Liaison – National Carers Coalition
Gold Coast City Council
Griffith University
Guaranteeing Futures (South East)
Guardianship Tribunal
Guyrow Pty Ltd

Hawkevale Trust
Hear and Say Centre – Hear and Say Worldwide
Help Darling Downs Inc.
Hobsons Bay City Council
House with No Steps
Housing NSW
Hume City Council

Information on Disability and Education Awareness Services (IDEAS) NSW
In Control
Inability Possibility
Inclusion Works
Independent Advocacy SA Inc.
Independent Advocacy Townsville
Independent Lifestyle Solutions (TAS)
Independent Living Centre of Western Australia
Independent Rehabilitation Suppliers Association
Interact Australia
Interwork Ltd

JMM Associates Pty Ltd
Julia Farr Association
Kevin Heinze Garden Centre Inc.
Kingaroy TAFE

Latrobe City Disability Reference Committee
Latrobe Community Health Service, Moe
Leadership Plus
Legacy NSW, People with Disabilities Advisory Committee
Legal Aid Queensland
Life Tech Queensland
Life Without Barriers
Lifestart Co-operative Ltd
Lifestyle in Supported Accommodation Inc.

Macarthur Disability Services
Mamre Association Inc.
Manning Gardens Public School
Mansfield Shire Council
Maribyrnong City Council
ME/Chronic Fatigue Syndrome Society of NSW
Media Access Australia
Melba Support Services
Mental Health Coordinating Council
Mental Health Council of Tasmania
Ministerial Advisory Committee: Students with Disabilities
Montrose Access
Moonee Valley City Council
Mornington Peninsula Shire
MS Australia
Multicultural Disability Advocacy Association from NSW
Multicultural Mental Health Australia
Multiple Sclerosis Society of SouthAustralia and Northern Territory Inc.
Munchies International
Municipal Association of Victoria
Muscular Dystrophy - Tasmania

Nambour Aged Care Assessment Team – Queensland Government
National Association for Conductive Education SA
National Association of Childbirth Educators (SA)
National Council for Women (QLD)
National Council of Social Services
National Council on Intellectual Disability
National Disability Services
National Ethnic Disability Alliance
National Stroke Foundation (WA)
Northcott Disability Services
Novita Children’s Services Inc.
NovitaTech
NSW Association of the Deaf
NSW Consumer Advisory Group
NSW Council for Intellectual Disability
NSW Disability Discrimination Legal Centre Inc.
NSW Ombudsman
NT Council of Social Services

Office of Disability and Client Services, DFC
Office of the Commissioner for Equal Opportunity
Office of the Public Advocate (QLD)
Onemda VicHealth Koori Health Unit
OT Australia – Australian Association of Occupational Therapists
Otto Bock Australia Pty Ltd

Paediatric Brain Injury Rehabilitation Team
Parents of the Hearing Impaired of SouthAustralia
Parkinsons Tasmania Inc.
Penrith City Council
People with Disabilities ACT
People with Disability Australia
Personal Advocacy Service
Perth Home Care Services
Physical Disability Australia Ltd
Physical Disability Council of New SouthWales
Pilbara Development Commission
Play Environment Consulting Pty Ltd
Playtas Pty Ltd
Premier's Physical Activity Taskforce
Private Mental Health Consumer Carer Network (Australia)
PSE Access Consulting
Public Interest Advocacy Centre Ltd
People with Multiple Sclerosis (PwMS) (Vic) Inc.

Queensland Parents for People with a Disability Inc.
Real Living Options Association Inc.

Reinforce Inc.
RMIT University
Royal Australian and New Zealand College of Psychiatrists
Royal Children's Hospital
Royal District Nursing Service (Victoria)
Royal Flying Doctor Service – National Office
Royal Rehab Aphasia Outpatient Group
Royal Society for the Blind
Royal Society for the Blind of SA Inc.
Royal South Australian Deaf Society Inc.
Ryde Area Supported Accommodation for Intellectually Disabled Inc.

Salubrious Productions
Samaritans Foundation
School of Population Health – University of Melbourne
Scope
Senses Foundation
Siblings Australia Inc.
Social and Community Services, Manningham Council, VIC
South Australian Taskforce on Multiple Chemical Sensitivity
Southern Health
Southern Tasmanian Youth Transitions Taskforce
Southern Therapy Service
Spastic Centre
Speaking Up For You Inc.
Special Olympics Australia
Speech Pathology Australia
Spina Bifida and Hydrocephalus Association of SA Inc.
Spinal Injuries Association
SPLASH
St George Association
St Michaels Association
Strategic Policy and Research Program, Commission for Children and Young People and Child Guardians
Sunnyfield Independence
Sunshine Coast Independent Living Service Inc.

Tamworth Regional Council – Access Group
Tangentyere's Aged and Community Services, Tangentyere Council
Telecommunications and Disability Consumer Representation
Toowoomba and District MS Support Group
Transport Victoria

UnitingCare Community Options Victoria
University of NewSouth Wales
University of Queensland
University of WesternSydney

Vicdeaf
Victorian Coalition ABI Service Providers
Victorian Council of Social Services
Victorian Equal Opportunity and Human Rights Commission
Victorian Mental Health Carers Network
Victorian Parents' Council
Villa Maria
Vision 2020 Australia
Vision Australia

Waverley Industries Limited
Wellington Shire Council
West End Mental Health
Western Australia Local Government Association
Western Region Disability Network
Western Sydney Intellectual Disability Support Group
Westernport Speaking Out Inc.
Whitehorse City Council
Whittlesea District Adult Training and Support Services
Witmore Training and Support
Women with Disabilities Australia
Women’s Centre for Health Matters
Workable Living

YMCA Australia
Youth Disability Advocacy Service (Youth Affairs Council of Victoria Inc.)

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Appendix C - About the consultation process

In announcing its commitment to the development of a National Disability Strategy, the Australian Government also pledged to ensure that people with disabilities and their families, friends and carers had a say in its creation. The aim of the public consultation process was to identify and explore the barriers faced by people with disabilities and their families, friends and carers in their day-to-day lives and to explore ideas about how these barriers could be broken down.

To help guide the community consultation process, the Australian Government produced a discussion paper. Launched on 17 October 2008 by the Hon Jenny Macklin MP, Minister for Families, Housing, Community Services and Indigenous Affairs, and the Hon Bill Shorten MP, Parliamentary Secretary for Disabilities and Children's Services, the discussion paper invited people to have their say by participating in a series of public consultations to be held across Australia and through written submissions.

The public consultations were held in all capital cities and in selected regional locations. The capital city consultations took place from 27 October to 26 November 2008 and were organised by the Australian Government Department of Families, Housing, Community Services and Indigenous Affairs. These consultations involved a wide range of participants, including individuals with a disability, parents of young and adult children with disabilities, carers, representatives from the disability services sector, non-government agencies, advocacy and lobby groups, business representatives, members of the National People with Disabilities and Carer Council, as well as officials from all levels of government. Table 1 provides the number of attendees at each location.

Each capital city consultation was chaired by Dr Rhonda Galbally AO, Chair of the National People with Disabilities and Carer Council. The council was established to provide expert advice and information to the Australian Government on the development and implementation of the National Disability Strategy. Through its membership, the council also provides a means for people with disabilities and their families, friends and carers to have an ongoing voice in the development of the strategy.

Fifty-two regional and remote area consultations were also held between October and December 2008 (see Table 2). These consultations were facilitated by the Australian Federation of Disability Organisations, and targeted specific groups, including people from Indigenous communities, people from multicultural backgrounds and women.

Due to the large number of submissions received, KPMG was engaged to conduct the preliminary analysis of the written feedback.